Family Caregiver Orang Dengan Skizofrenia (ODS): Permasalahan, Strategi Coping, dan Sumber Dukungan

Libbie Annatagia

Abstract


Skizofrenia adalah gangguan mental berat dimana individu mengalami disfungsi kognitif, emosi,  dan perilaku. Orang Dengan Skizofrenia (ODS) umumnya memerlukan pendampingan keluarga dalam menjalani kehidupan sehari-hari, sehingga keluarga memiliki peran yang besar untuk kesembuhan ODS. Penelitian ini bertujuan untuk menggali permasalahan, strategi coping dan sumber dukungan family caregiver pasien skizofrenia. Penelitian ini melibatkan tiga orang family caregiver ODS. Penelitian ini menggunakan metode penelitian kualitatif. Data penelitian dianalisis menggunakan analisis tematik. Hasil penelitian ini menemukan bahwa permasalahan yang dialami oleh caregiver secara umum terbagi menjadi tiga, yaitu masalah yang berhubungan dengan pasien skizofrenia, masalah hubungan interpersonal antara caregiver dengan pasien, dan masalah yang berhubungan dengan caregiver. Penelitian ini juga menemukan strategi coping partisipan serta sumber dukungan formal (pemerintah dan institusi kesehatan) dan dukungan informal (komunitas penderita skizofrenia di media sosial dan tokoh agama).


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Allison, S., Bastiampillai, T., Fuller, D.A., Gupta, A., Chan, S.K. (2016). The royal Australian and New Zealand college of psychiatrists guidelines. Acute inpatient care for schizophrenia. 2016; 51 (2): 191–192. https: //doi.org/ 10.1177/ 0004867416667235, 101177/ 0004867416667235.

Awad, A.G., Voruganti, L.N.P. (2008). The burden of schizophrenia on caregivers: a review. Pharmacoeconomic;26(2):149-62. Doi: 10.2165/00019053-200826020-00005.

Biggs, A., Brough, P., dan Drummond, S. (2017). Lazarus and Folkman’s Psychological Stres and Coping Theory. The Handbook of Stres And Health. A Guide To Research And Practice. Edited by Cary L. Cooper and James Campbell Quick. West Sussex: John Wiley & Sons Ltd.

Chadda, R. K. (2014). Caring for the family caregivers of persons with mental illness. Indian J Psychiatry, Jul;56(3):221-7. doi: 10.4103/0019-5545.140616.

Charlson, F.J., Ferrari, A.J., Santomauro, D.F., Diminic, S., Stockings, E., Scott, J.G., McGrath, J.J., Whiteford, H.A., 2018. Global epidemiology and burden of schizophrenia: findings from the global burden of disease study 2016. Schizophr. Bull. 44, 1195–1203. https://doi.org/10.1093/schbul/sby058.

Chen, L., Zhao, Y., Tang, J., Jin, G., Liu, Y., Zhao, X., Chen, C., & Lu, X. (2019). The burden, support and needs of primary family caregivers of people experiencing schizophrenia in Beijing communities: a qualitative study. BMC Psychiatry, 19(1), 1– 10.

Denzin, N. K. & Lincoln, Y. S. (2009). Handbook of qualitative research. Yogyakarta: Pustaka Pelajar.

Durand, V. M. & Barlow, D. H. (2007). Psikologi abnormal: Edisi keempat. Yogyakarta: Pustaka Pelajar.

Esmaeili, A.A., Saeidi, A., Mohammadi, Y., Raeisoon, M. (2022). The effect of group psychological training on the attitude of family caregivers of patients with schizophrenia. Heliyon, Volume 8,Issue 7, 2022, e09817,ISSN 2405-8440. https: //doi.org/ 10.1016/ j.heliyon.2022.e09817.

Farooq, S., Nazar, Z., Irfan, M., Akhter, J., Gul, E., Irfan, U., Naeem, F., 2011. Schizophrenia medication adherence in a resource-poor setting: randomised controlled trial of supervised treatment in outpatients for schizophrenia (STOPS). Br. J. Psychiatry 199 (6), 467–472. https://doi.org/10.1192/bjp.bp.110.085340.

Hadiansyah, T., Pragholapati, A. (2020). Kecemasan keluarga dalam merawat klien skizofrenia. Jurnal Keperawatan ‘Aisyiyah, vol.7, no.1.

Issac, A., Yesodharan, R., Sequira, L. (2023). Primary caregiver’s experiences in caring paranoid schizophrenia patients: a qualitative study. Clinical Epidemiology and Global Health 24 (2023) 101413. https://doi.org/10.1016/j.cegh.2023.101413.

Jack-Ide, I.O. ., Uys, L.R. ., Middleton, L.E. (2013). Caregiving experiences of families of persons with serious mental health problems in the Niger Delta region of Nigeria, Int. J. Ment. Health Nurs. 22 (2) (2013) 170–179, https://doi.org/10.1111/j.1447-0349.2012.00853.x.

Kring, A. M., Johnson, S. L., Davison, G. C., Neale, J. M. (2010). Abnormal psychology: Eleventh edition. International student version. United Kingdom: John Wiley and Sons, Inc.

Kumar, C.N., Thirthalli, J., Suresha, K.K., Venkatesh, B.K., Kishorekumar, K.V., Arunachala, U., Gangadhar, B.N., 2016. Reasons for schizophrenia patients remaining out of treatment: results from a prospective study in a rural South Indian community. Indian J. Psychol. Med. 38 (2), 101–104. https://doi.org/10.4103/ 0253-7176.178767.

Moleong, L. J. (2005). Metodologi penelitian kualitatif edisi revisi. Bandung: Remaja Rosdakarya.

Murray-Swank, A. B., Lucksted, A., Medoff, D. R., Yang, Y., Wohlheiter, K., & Dixon, L. B. (2006). Religiosity, Psychosocial Adjustment, and Subjective Burden of Persons Who Care for Those With Mental Illness. Psychiatric Services, 57(3), 361–365. https://doi.org/10.1176/appi.ps.57.3.361

Poerwandari, E. K. (2009). Pendekatan kualitatif untuk penelitian perilaku manusia. Fakultas Psikologi Universitas Indonesia: Lembaga Pengembangan Sarana Pengukuran dan Pendidikan Psikologi (LPSP3).

Rahmani, F., Ranjbar, F., Hosseinzadeh, M., Razavi, S.S., Dickens, G.L., Vahidi, M. (2019). Coping strategies of family caregivers of patients with schizophrenia in Iran : A cross-sectional survey. International Journal of Nursing Sciences 6 (2019) 148-153. https:// doi.org/ 10.1016/ j.ijnss.2019.03.006 2352-0132.

Rungreangkulkij, S., Gilliss, C.L. (2000). Conceptual approaches to studying family caregiving for persons with severe mental illness. Journal of Family Nursing, 6; 341. DOI: 10.1177/107484070000600403

Samuel, T., Nigussie, K., Mirkena, Y., Azale, T., 2022. Relationship between social support and schizophrenia relapse among patients with schizophrenia on follow-up at Amanuel Mental Specialized Hospital, Addis Ababa, Ethiopia: a case-control study. Front. Psychiatr. 13, 980614 https://doi.org/10.3389/fpsyt.2022.980614.

Semahegn, A., Torpey, K., Manu, A., Assefa, N., Tesfaye, G., Ankomah, A., 2020. Psychotropic medication non-adherence and its associated factors among patients with major psychiatric disorders: a systematic review and meta-analysis. Syst. Rev. 9 (17) https://doi.org/10.1186/s13643-020-1274-3.

Skinner EA, Edge K, Altman J, Sherwood H. Searching for the structure of coping: a review and critique of category systems for classifying ways of coping. Psychol Bull 2003;129(2):216e69.

Silviyana, A., Kusumajaya, H., Fitri, N. 2024. Faktor – faktor yang berhubungan dengan kekambuhan pada pasien skizofrenia. Jurnal Penelitian Perawat Profesional, Volume 6 Nomor 1, Februari 2024. e-ISSN 2715-6885; p-ISSN 2714-9757 http://jurnal.globalhealthsciencegroup.com/index.php/JPPP.

Smolak, A., Gearing, R.E., Alonzo, D., Baldwin, S., Harmon, S., McHugh, K. (2013). Social support and religion: mental health service use and treatment of schizophrenia. Community Ment Health J; 49 (4) : 444-50. doi: 10.1007/s10597-012-9536-8.

Swai, P., Desjardins, M., Minja A., Headley, J., Lawala, P., Ndelwa, L., Maboja, C., Temu J., Lukens, E., Kaaya, S., Baumgartner, J.N. (2024). Social support and managing schizophrenia in Tanzania: Perspectives from treatment-engaged individuals and relative caregivers.

Upasen, R., Saengpanya, W. (2022). Combating with compassion fatigue: the perspective of family caregivers of people with schizophrenia. Asian Nursing Research 16 (2022) 249-255. Doi: https://doi.org/10.1016/j.anr.2022.09.001.

Tham, X.C., Xie, H., Chng, C.M., Seah, X.Y., Lopez, V., Klainin-Yobas, P., 2016. Factors affecting medication adherence among adults with schizophrenia: a literature review. Arch. Psychiatr. Nurs. 30 (6), 797–809. https://doi.org/10.1016/j. apnu.2016.07.007.

Tolley, E.E., Ulin, P.R., Mack, N., Robinson, E.T., Succop, S.M. (2016). Qualitative Methods in Public Health: A Field Guide for Applied Research, second ed. JosseyBass, San Francisco CA.

Williams AP, Peckham A, Kuluski K, et al. Caring for caregivers: challenging the assumptions. HealthcarePapers. 2015;15(1):8–21. https://doi.org/10.12927/ hcpap.2015.24401.

Wong, P.T.P., Wong, L.C. J., Dan Scott, C. (2006). Beyond Stres And Coping: The Positive Psychology Of Transformation. Handbook of Multicultural Perspectives on Stres and Coping. Editor: Paul T. P. Wong, Ph.D. Lilian C. J. Wong. New York: Springer Science+Business Media, Inc.

World Health Organization (WHO). (2022, January). Schizophrenia. World Health Organization.

Yin, Y., Zhang, W., Hu, Z. ., Jia, F., Li, Y., Xu, H. et al., Experiences of stigma and discrimination among caregivers of persons with schizophrenia in China: a field survey, PLoS One 9 (9) (2014), e108527, https://doi.org/10.1371/journal.pone.0108527




DOI: http://dx.doi.org/10.30659/psisula.v6i0.42834

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